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PAPER READING WORKSHOP – Navigating ‚Ethics in Practice’: an Ethnographic Case Study with Young Women Living with HIV in Zambia

Datum
25. März 2021 

This is a paper read­ing work­shop, with a chance for a Q and A with the first author Con­stance R.S. Mackworth-Young.

So, you will have the chance to ask ques­tions about both the con­tents of the paper and the writing/publications process. Please read the paper in advance. No social sci­ence back­ground required! For enquires email g.aellah@bsms.ac.uk

The paper will be sum­marised by Corin­na Thell­mann, fol­lowed by an open dis­cus­sion, and then the Q and A with the author.

Abstract:

While ‘pro­ce­dur­al ethics’ pro­vides essen­tial frame­works for gov­ern­ing glob­al health research, reflect­ing on ‘ethics in prac­tice’ offers impor­tant insights into address­ing eth­i­cal­ly impor­tant moments that arise in every­day research. Par­tic­u­lar­ly for ethno­graph­ic research, renowned for its flu­id and spon­ta­neous nature, engag­ing with ‘ethics in prac­tice’ has the poten­tial to enhance research prac­tice with­in glob­al health. We pro­vide a case study for such reflex­iv­i­ty, explor­ing ‘ethics in prac­tice’ of ethno­graph­ic research with mid­dle-income young women liv­ing with HIV in Lusa­ka, Zam­bia. We explore the eth­i­cal issues aris­ing from the lay­ered inter­ac­tion of the pop­u­la­tion (young women), the dis­ease under inves­ti­ga­tion (HIV), the method of study (ethno­graph­ic), and the set­ting (Zam­bia, a low­er mid­dle income coun­try). We describe how we nav­i­gat­ed five key prac­ti­cal eth­i­cal ten­sions that arose, name­ly the psy­cho-emo­tion­al ben­e­fits of the research, the nego­ti­at­ed researcher-par­tic­i­pant rela­tion­ship, pro­tect­ing par­tic­i­pants’ HIV sta­tus, con­fi­den­tial­i­ty and data own­er­ship, and researcher oblig­a­tions after the end of the research. We exem­pli­fy reflex­ive engage­ment with ‘ethics in prac­tice’ and sug­gest that engag­ing with ethics in this way can make impor­tant con­tri­bu­tions towards devel­op­ing more ade­quate eth­i­cal guide­lines and research prac­tice in glob­al pub­lic health.

 

The paper is here: https://www.tandfonline.com/doi/full/10.1080/17441692.2019.1616799.  An open source ver­sion is avail­able here for those with­out insti­tu­tion­al access:

https://researchonline.lshtm.ac.uk/id/eprint/4653048/3/Ethics-in-Practice_Mackworth-Young-etal_Authors-Approved.pdf

 

Join Zoom Meeting:

https://universityofsussex.zoom.us/j/96015240088


This is a paper read­ing work­shop, with a chance for a Q and A with the first author Con­stance R.S. Mackworth-Young.

So, you will have the chance to ask ques­tions about both the con­tents of the paper and the writing/publications process. Please read the paper in advance. No social sci­ence back­ground required! For enquires email g.aellah@bsms.ac.uk

The paper will be sum­marised by Corin­na Thell­mann, fol­lowed by an open dis­cus­sion, and then the Q and A with the author.

Abstract:

While ‘pro­ce­dur­al ethics’ pro­vides essen­tial frame­works for gov­ern­ing glob­al health research, reflect­ing on ‘ethics in prac­tice’ offers impor­tant insights into address­ing eth­i­cal­ly impor­tant moments that arise in every­day research. Par­tic­u­lar­ly for ethno­graph­ic research, renowned for its flu­id and spon­ta­neous nature, engag­ing with ‘ethics in prac­tice’ has the poten­tial to enhance research prac­tice with­in glob­al health. We pro­vide a case study for such reflex­iv­i­ty, explor­ing ‘ethics in prac­tice’ of ethno­graph­ic research with mid­dle-income young women liv­ing with HIV in Lusa­ka, Zam­bia. We explore the eth­i­cal issues aris­ing from the lay­ered inter­ac­tion of the pop­u­la­tion (young women), the dis­ease under inves­ti­ga­tion (HIV), the method of study (ethno­graph­ic), and the set­ting (Zam­bia, a low­er mid­dle income coun­try). We describe how we nav­i­gat­ed five key prac­ti­cal eth­i­cal ten­sions that arose, name­ly the psy­cho-emo­tion­al ben­e­fits of the research, the nego­ti­at­ed researcher-par­tic­i­pant rela­tion­ship, pro­tect­ing par­tic­i­pants’ HIV sta­tus, con­fi­den­tial­i­ty and data own­er­ship, and researcher oblig­a­tions after the end of the research. We exem­pli­fy reflex­ive engage­ment with ‘ethics in prac­tice’ and sug­gest that engag­ing with ethics in this way can make impor­tant con­tri­bu­tions towards devel­op­ing more ade­quate eth­i­cal guide­lines and research prac­tice in glob­al pub­lic health.

 

The paper is here: https://www.tandfonline.com/doi/full/10.1080/17441692.2019.1616799.  An open source ver­sion is avail­able here for those with­out insti­tu­tion­al access:

https://researchonline.lshtm.ac.uk/id/eprint/4653048/3/Ethics-in-Practice_Mackworth-Young-etal_Authors-Approved.pdf

 

Join Zoom Meeting:

https://universityofsussex.zoom.us/j/96015240088