SEMINAR – The political economy of health data. Infrastructures, flows and power

Datum
24. August 2020 

Dear col­leagues,

August 24, 2020, we will be host­ing a sem­i­nar with a great list of promi­nent experts on the polit­i­cal econ­o­my of health data. Please save the date if you are inter­est­ed in these issues! See offi­cial announce­ment attached.

The polit­i­cal econ­o­my of health data: infra­struc­tures, flows and power

Sem­i­nar orga­nized by Klaus Hoey­er (Uni­ver­si­ty of Copen­hagen) and Alan Petersen (Monash University)

Con­trib­u­tors include:

Mark Andreje­vic (Monash U)

Ulrike Felt (U of Vienna)

Nina Hal­low­ell (Oxford U)

Mette Hartlev (U of Copenhagen)

Lin­da Hogle (Madi­son-Wis­con­sin)

Jane Kaye (Oxford U)

Samuel Lengen (U of Virginia)

Moira Pater­son (Monash U)

Bar­bara Prain­sack (U of Vienna)

Tamar Sharon (Raboud U)

Sarah Wad­mann (VIVE),

Brit Winthereik (IT Uni­ver­si­ty of Copenhagen)

Sal­ly Wyatt (Maas­tricht U)

With per­va­sive dig­i­tal­iza­tion of every­day activ­i­ties, our social, pro­fes­sion­al and polit­i­cal life now unfold under new con­di­tions. All forms of dig­i­tal­ly medi­at­ed activ­i­ty poten­tial­ly gen­er­ate data and that data can be exchanged on the plat­forms facil­i­tat­ing the activ­i­ty. It has led some schol­ars to talk about the emer­gence of a plat­form soci­ety. The plat­form soci­ety poten­tial­ly trans­gress­es nation­al bound­aries and cre­ate new glob­al data flows – but not all data flow freely, and dif­fer­ent nation­al and supra­na­tion­al regimes are emerg­ing and they demar­cate data use dif­fer­ent­ly. If the Inter­net was once said to make all infor­ma­tion equal­ly acces­si­ble for all, we today know that new forms of data divides are devel­op­ing. As data gain com­mer­cial val­ue, they become guard­ed by trade secrets and both com­mer­cial, polit­i­cal and nation­al secu­ri­ty inter­ests gen­er­ate new divi­sions between those with access and those without.

The new data divides influ­ence how data is pro­duced and used. This sem­i­nar inves­ti­gates the polit­i­cal econ­o­my of health data in light of the new divi­sion of data access. Old dis­tinc­tions between health data and oth­er data seem to be emerg­ing and oth­ers erod­ing. If health data used to be seen as par­tic­u­lar­ly sen­si­tive and guard­ed by spe­cial rules in var­i­ous juris­dic­tions, it is today the plat­form as much as the nature of the infor­ma­tion that deter­mines the lev­el of sen­si­tiv­i­ty – and in some juris­dic­tions whether they even count as health data. There is a need to under­stand bet­ter the emerg­ing glob­al polit­i­cal econ­o­my of health data and to explore how glob­al vari­a­tions cre­ate very dif­fer­ent pow­er effects and involve very dif­fer­ent poten­tials for data sub­jects and data users.

The sem­i­nar com­pares data infra­struc­tures in dif­fer­ent geospheres by pur­su­ing the fol­low­ing cross-cut­ting themes of comparison:

Which actors build, con­trol and use the data infra­struc­tures for health­care and health-relat­ed research?
What counts as health data? Are they guard­ed or defined in any par­tic­u­lar way?
When infra­struc­tur­al plat­forms are used for health data exchange, how are they then con­nect­ed and which geo­graph­i­cal ties do they involve?
How do tech­ni­cal, eco­nom­ic, reg­u­la­to­ry and geo­graph­i­cal fea­tures affect the pur­pos­es to which data are put and by whom?
How do pol­i­cy­mak­ers con­strue and engage the affect­ed publics?
PRACTICALITIES

· Par­tic­i­pa­tion in the sem­i­nar is free, but reg­is­tra­tion is required. Details will be announced in Jan­u­ary, 2020

· The sem­i­nar will take place on August 24, 2020, at the Uni­ver­si­ty of Copen­hagen, Denmark

· Fund­ed by Aus­tralian Research Coun­cil and the Euro­pean Research Council

Klaus Lindgaard Høyer

Pro­fes­sor
Køben­havns Universitet
Det Sund­hedsv­i­den­sk­a­belige Fakultet
Afdel­ing for Sundhedstjenesteforskning
Øster Farimags­gade 5A, Lokale 10.0.09
DK-1014 Køben­havn K
T: 3532 7996
F: 3532 7629
M: 2625 6342
S: k.hoeyer

Dear col­leagues,

August 24, 2020, we will be host­ing a sem­i­nar with a great list of promi­nent experts on the polit­i­cal econ­o­my of health data. Please save the date if you are inter­est­ed in these issues! See offi­cial announce­ment attached.

The polit­i­cal econ­o­my of health data: infra­struc­tures, flows and power

Sem­i­nar orga­nized by Klaus Hoey­er (Uni­ver­si­ty of Copen­hagen) and Alan Petersen (Monash University)

Con­trib­u­tors include:

Mark Andreje­vic (Monash U)

Ulrike Felt (U of Vienna)

Nina Hal­low­ell (Oxford U)

Mette Hartlev (U of Copenhagen)

Lin­da Hogle (Madi­son-Wis­con­sin)

Jane Kaye (Oxford U)

Samuel Lengen (U of Virginia)

Moira Pater­son (Monash U)

Bar­bara Prain­sack (U of Vienna)

Tamar Sharon (Raboud U)

Sarah Wad­mann (VIVE),

Brit Winthereik (IT Uni­ver­si­ty of Copenhagen)

Sal­ly Wyatt (Maas­tricht U)

With per­va­sive dig­i­tal­iza­tion of every­day activ­i­ties, our social, pro­fes­sion­al and polit­i­cal life now unfold under new con­di­tions. All forms of dig­i­tal­ly medi­at­ed activ­i­ty poten­tial­ly gen­er­ate data and that data can be exchanged on the plat­forms facil­i­tat­ing the activ­i­ty. It has led some schol­ars to talk about the emer­gence of a plat­form soci­ety. The plat­form soci­ety poten­tial­ly trans­gress­es nation­al bound­aries and cre­ate new glob­al data flows – but not all data flow freely, and dif­fer­ent nation­al and supra­na­tion­al regimes are emerg­ing and they demar­cate data use dif­fer­ent­ly. If the Inter­net was once said to make all infor­ma­tion equal­ly acces­si­ble for all, we today know that new forms of data divides are devel­op­ing. As data gain com­mer­cial val­ue, they become guard­ed by trade secrets and both com­mer­cial, polit­i­cal and nation­al secu­ri­ty inter­ests gen­er­ate new divi­sions between those with access and those without.

The new data divides influ­ence how data is pro­duced and used. This sem­i­nar inves­ti­gates the polit­i­cal econ­o­my of health data in light of the new divi­sion of data access. Old dis­tinc­tions between health data and oth­er data seem to be emerg­ing and oth­ers erod­ing. If health data used to be seen as par­tic­u­lar­ly sen­si­tive and guard­ed by spe­cial rules in var­i­ous juris­dic­tions, it is today the plat­form as much as the nature of the infor­ma­tion that deter­mines the lev­el of sen­si­tiv­i­ty – and in some juris­dic­tions whether they even count as health data. There is a need to under­stand bet­ter the emerg­ing glob­al polit­i­cal econ­o­my of health data and to explore how glob­al vari­a­tions cre­ate very dif­fer­ent pow­er effects and involve very dif­fer­ent poten­tials for data sub­jects and data users.

The sem­i­nar com­pares data infra­struc­tures in dif­fer­ent geospheres by pur­su­ing the fol­low­ing cross-cut­ting themes of comparison:

Which actors build, con­trol and use the data infra­struc­tures for health­care and health-relat­ed research?
What counts as health data? Are they guard­ed or defined in any par­tic­u­lar way?
When infra­struc­tur­al plat­forms are used for health data exchange, how are they then con­nect­ed and which geo­graph­i­cal ties do they involve?
How do tech­ni­cal, eco­nom­ic, reg­u­la­to­ry and geo­graph­i­cal fea­tures affect the pur­pos­es to which data are put and by whom?
How do pol­i­cy­mak­ers con­strue and engage the affect­ed publics?
PRACTICALITIES

· Par­tic­i­pa­tion in the sem­i­nar is free, but reg­is­tra­tion is required. Details will be announced in Jan­u­ary, 2020

· The sem­i­nar will take place on August 24, 2020, at the Uni­ver­si­ty of Copen­hagen, Denmark

· Fund­ed by Aus­tralian Research Coun­cil and the Euro­pean Research Council

Klaus Lindgaard Høyer

Pro­fes­sor
Køben­havns Universitet
Det Sund­hedsv­i­den­sk­a­belige Fakultet
Afdel­ing for Sundhedstjenesteforskning
Øster Farimags­gade 5A, Lokale 10.0.09
DK-1014 Køben­havn K
T: 3532 7996
F: 3532 7629
M: 2625 6342
S: k.hoeyer