Veranstaltungen

Veranstaltungskalender

An dieser Stelle präsentieren wir ausgewählte Veranstaltungen aus dem interdisziplinären Arbeitsfeld Ethnologie und Medizin.

Wir freuen uns über Veranstaltungshinweise an events@agem.de

20. Sep – 09. Aug 2019

Visual Science – The Art of Research

Ausstel­lung

This exhib­it fea­tures images and objects drawn from a vari­ety of dis­ci­plines and time peri­ods that show the impor­tance of visu­al expe­ri­ences in science.

Spe­cial Exhi­bi­tions Gallery

This exhib­it fea­tures images and objects drawn from a vari­ety of dis­ci­plines and time peri­ods that show the impor­tance of visu­al expe­ri­ences in sci­ence. Images have played many roles in sci­en­tif­ic research. Images can record fleet­ing obser­va­tions, whether a paint­ing of an ani­mal glimpsed in the field or an inter­ac­tion between sub-atom­ic par­ti­cles that lasts a mil­lisec­ond. They can also make unseen things vis­i­ble. Phys­i­cal mod­els can make abstract math­e­mat­i­cal con­cepts into some­thing that researchers can touch; prop­er­ly arranged, sand, met­al plates, and a vio­lin bow can make sound waves into images. Find­ing pat­terns in both kinds of images, or painstak­ing­ly trans­form­ing images into data can lead to new discoveries.

https://chsi.harvard.edu/exhibitions/special-exhibitions

 

Perma­link

09. Mrz – 11. Mrz 2022

Rare Diseases, Global Health, and Social Sciences: Counterbalancing Biomedical Reductionism

Work­shop

The work­shop Rare Dis­eases, Glob­al Health, and Social Sci­ences: Coun­ter­bal­anc­ing Bio­med­ical Reduc­tion­ism aims to bring togeth­er, enhance and fur­ther devel­op social sci­ence and med­ical human­i­ties approach­es to the glob­al­iz­ing RD field by address­ing these chal­lenges and con­cerns that include social accep­tance, equal­i­ty, inclu­sion, polit­i­cal recog­ni­tion, empow­er­ment, and geo­graph­i­cal and cul­tur­al considerations.

Venue: Brocher
Foun­da­tion, Her­mance, Switzerland
Orga­niz­ers: Mal­go­rza­ta Raj­tar (Insti­tute of Philosophy
and Soci­ol­o­gy, Pol­ish Acad­e­my of Sci­ences) & Eva-Maria Knoll (Insti­tute for Social Anthro­pol­o­gy, Aus­tri­an Acad­e­my of Sciences)

The last two decades have wit­nessed the grow­ing impor­tance of the „Rare Dis­ease” (RD) cat­e­go­ry in the con­text of nation­al health poli­cies and Glob­al Health. Lack­ing a uni­ver­sal def­i­n­i­tion, RDs are defined as con­di­tions that affect no
more than 1 in 2000 peo­ple in the EU and Aus­tralia; they affect few­er than 200,000 and 50,000 in the US and Japan respec­tive­ly. It is esti­mat­ed that some 30 mil­lion peo­ple in the EU and 263–446 mil­lion glob­al­ly live with one of the over
6000 described RDs. In a 2021 res­o­lu­tion, the Unit­ed Nations pre­sent­ed the com­plex nature of the chal­lenges peo­ple liv­ing with a D and their fam­i­lies face as being intrin­si­cal­ly linked to both human rights and to the Sustainable
Devel­op­ment Goals. The 2021 report issued by the glob­al alliance Rare Dis­ease Inter­na­tion­al iden­ti­fied ten com­mon chal­lenges and needs that impact diag­no­sis, care, and treat­ment of the RD pop­u­la­tion glob­al­ly. A sig­nif­i­cant proportion
of the list­ed chal­lenges and needs lies beyond the realm of bio­med­i­cine and life sciences.

The work­shop Rare Dis­eases, Glob­al Health, and Social Sci­ences: Coun­ter­bal­anc­ing Bio­med­ical Reduc­tion­ism aims to bring togeth­er, enhance and fur­ther devel­op social sci­ence and med­ical human­i­ties approach­es to the glob­al­iz­ing RD field by address­ing these chal­lenges and con­cerns that include social accep­tance, equal­i­ty, inclu­sion, polit­i­cal recog­ni­tion, empow­er­ment, and geo­graph­i­cal and cul­tur­al con­sid­er­a­tions. In par­tic­u­lar, the work­shop pro­pos­es to address three the­mat­ic areas that have a sig­nif­i­cant and long-term impact on both the indi­vid­ual lives of peo­ple with a RD as well as on soci­ety, health poli­cies, economies, and pol­i­tics on nation­al and glob­al lev­els. These include (a) vul­ner­a­bil­i­ties of peo­ple with RDs, (2) the patient tran­si­tion to adult­hood and aging, and (3) the judi­cial­iza­tion of health with­in the field of RDs. The work­shop will also crit­i­cal­ly engage D ini­tia­tives that orig­i­nate in and are pro­mot­ed by the West­ern world, much like Glob­al Health ini­tia­tives, which have recent­ly received ample crit­i­cism for being dri­ven by bio­med­ical reduc­tion­ism. We invite con­tri­bu­tions from schol­ars in anthro­pol­o­gy, soci­ol­o­gy, the med­ical human­i­ties, bioethics, law, and relat­ed dis­ci­plines as well as patient orga­ni­za­tion rep­re­sen­ta­tives that address the social, polit­i­cal, and eco­nom­ic con­se­quences of bio­med­ical reduc­tion­ism in the field of RDs, includ­ing the above-men­tioned topics.

The work­shop will gath­er an inter­dis­ci­pli­nary group of schol­ars and experts who are involved in research, pub­li­ca­tion, and advo­ca­cy in RDs and Glob­al Health. Con­firmed speak­ers include Wales­ka Aure­liano (Rio de Janeiro State Uni­ver­si­ty, Brasil), Gior­gio Broc­co (Uni­ver­si­ty of Vien­na, Aus­tria), Nan­cy J. Burke (UC Merced, USA), Sangee­ta Chat­too (Uni­ver­si­ty of York, UK), Pauline McCor­ma­ck (New­cas­tle Uni­ver­si­ty, UK), and Samuel Agyei Wiafe (Rare Dis­ease Ghana Initiative).

The work­shop is planned as an in-per­son event. There is no work­shop fee, how­ev­er, the costs of trav­el and
accom­mo­da­tions can­not be cov­ered by the organizers.

To apply, please send an abstract (300 words max.) and a short bio to Mal­go­rza­ta Raj­tar mrajtar@ifispan.edu.pl and
Eva-Maria Knoll eva-maria.knoll@oeaw.ac.atby Sep­tem­ber 30, 2022.

Perma­link

03. Mrz – 05. Mrz 2023

36. Symposion zur Geschichte der Psychoanalyse

Kon­ferenz

Das Sym­po­sion zur Geschichte der Psy­cho­analyse find­et jährlich Ende Februar/Anfang März statt.

Das Sym­po­sion zur Geschichte der Psy­cho­analyse find­et jährlich Ende Februar/Anfang März statt. Gegrün­det 1987 in Kas­sel von Hel­mut Junker und Ger­hard Wit­ten­berg­er, wurde es ab 1996 von Ger­hard Ficht­ner und Albrecht Hirschmüller am Insti­tut für Geschichte der Medi­zin in Tübin­gen fort­ge­führt. Als die bei­den Tübinger Organ­isatoren 2010 ihre Funk­tion auf­gaben, wurde das Sym­po­sion nach Berlin ver­legt, wo es bis 2020 von Michael Schröter (Berlin), Thomas Aich­horn (Wien) und (seit 2017) Rain­er Her­rn (Berlin) unter Träger­schaft des INSTITUTS FÜR GESCHICHTE DER MEDIZIN an der Char­ité (Direk­tor: Volk­er Hess) organ­isiert wurde. Sekre­tariell wird es seit 2011 von Sabine Selle (Char­ité) betreut. Eben­falls seit 2011 zeich­net LUZIFER-AMOR formell als Mit-Ver­anstal­ter. Der Tagung­sort war bis 2019 auf dem Char­ité-Gelände in Berlin-Mitte. 2020 wurde das Sym­po­sion erst­mals in den Räu­men der  Inter­na­tion­al Psy­cho­an­a­lyt­ic Uni­ver­si­ty (IPU) abge­hal­ten. Ab 2021 liegt die Organ­i­sa­tion in den Hän­den von Ludger M. Her­manns, Rain­er Her­rn und Andrea Hup­p­ke (alle Berlin). Das erste Tre­f­fen der neuen Ägide musste Coro­na-bed­ingt im online-Modus stat­tfind­en. – Für die Teil­nahme wer­den Zer­ti­fizierungspunk­te vergeben.

In sein­er langjähri­gen Geschichte hat sich das Sym­po­sion zum zen­tralen Forum der psy­cho­analy­se­his­torischen Szene im deutschsprachi­gen Bere­ich her­aus­ge­bildet. Das Pro­gramm wird in der Haupt­sache nicht „gemacht”, son­dern repräsen­tiert laufende Arbeit­spro­jek­te im Feld, soweit sie zum Vor­trag ange­boten wer­den. Die Mehrzahl der Ref­er­enten sind nicht-akademis­che Forsch­er, die gle­ich­wohl akademis­ches Niveau anstreben. Auch akademis­che Autoren aus ver­schiede­nen Fakultäten, vor allem jün­gere, nutzen das Sym­po­sion zur Vorstel­lung ein­schlägiger Arbeiten.

Die Teil­nehmerzahl hat sich, nach Spitzen­werten von über 120, auf ca. 90–100 Per­so­n­en eingepegelt. Trotz­dem hat die Ver­anstal­tung ihren Charak­ter als Arbeit­str­e­f­fen behal­ten. Die Kosten, und damit auch die Teil­nah­mege­bühren, wer­den bewusst niedrig gehal­ten. Für den Ablauf galt lange, dass am Fre­ita­gnach­mit­tag zwei, am Sam­stag zweimal drei und am Son­ntagvor­mit­tag zwei halb­stündi­ge Vorträge ange­boten wur­den. Seit 2017 wird für den Fre­ita­gnach­mit­tag ein „Ehren­gast” ein­ge­laden: ein/e namhafte/r Kolleg/in, auch aus dem Aus­land, der/die nor­maler­weise nicht den Weg zu uns find­en würde und dem/der eine län­gere Vor­tragszeit zur Ver­fü­gung gestellt wird. Es wird Wert darauf gelegt, dass nach den Vorträ­gen je eine halbe Stunde Zeit für die Diskus­sion bleibt. Das Sym­po­sion wird durch eine organ­isatorische Sitzung beschlossen, in der sein basis­demokratis­ch­er Charak­ter zur Gel­tung kommt. Ein Buf­fet am Fre­itagabend ist fes­ter Bestandteil des Pro­gramms. Auch am Sam­stagabend wird die Möglichkeit für ein gesel­liges Zusam­men­sein geboten. Passende Rand­ver­anstal­tun­gen, zum Beispiel „Mit­teilun­gen aus dem Archiv zur Geschichte der Psy­cho­analyse”, wer­den je nach Ange­bot ins Pro­gramm aufgenommen.

Aus Anlass des 20. Sym­po­sions 2007 hat Ger­hard Ficht­ner die Pro­gramme der bish­eri­gen Sym­posien zusam­mengestellt. Seine Doku­men­ta­tion, ergänzt um die Sym­posien 21 und 22, ist von dieser Seite aus zugänglich. Ab dem 23. Sym­po­sion wird eine neue, fort­laufende Doku­men­ta­tion vorgelegt. Außer­dem kön­nen auf dieser Seite der Call for Papers und das Pro­gramm (mit Anmelde­for­mu­lar) des jew­eils bevorste­hen­den Sym­po­sions abgerufen werden.

In der Ple­narver­samm­lung des 25. Sym­po­sions wurde beschlossen, dass sich das Sym­po­sion zum Gedenken an Ger­hard Ficht­ner, der am 4. Jan­u­ar 2012 ver­stor­ben ist (siehe den Nachruf in LUZIFER-AMOR, Heft 49), an der Ein­rich­tung eines Ger­hard-Ficht­ner-Stipendi­ums für Forschun­gen zur Geschichte der Psy­cho­analyse beteiligt, das auf Anre­gung von Ludger M. Her­manns, dem Vor­sitzen­den des Vere­ins Archiv zur Geschichte der Psy­cho­analyse, ins Leben gerufen wurde.

 

Kon­takt:

Ludger M. Her­manns: LM.Hermanns@t‑online.de
Rain­er Her­rn: rainer.herrn@charite.de
Andrea Hup­p­ke: a.huppke@web.de
Tagungs­büro (Sabine Selle): sym­po­sion-psy­cho@charite.de

Perma­link

15. Mrz – 17. Mrz 2023

Circulations of Knowledges in Digital Medical Applications

Pan­el

The new work­ing alliances raise ques­tions about how knowl­edge is cre­at­ed, trans­lat­ed, passed on, and cre­ate new rela­tion­ships of dependency.

Please find our CfP “Cir­cu­la­tions of Knowl­edges in Dig­i­tal Med­ical Appli­ca­tions”/fSTS (for STS-hub.de 2023) attached. STS-hub.de takes place on March 15th-17th 2023 at Human Tech­nol­o­gy Cen­ter Aachen

Dead­line for abstracts is Octo­ber 16th 2022.

In med­i­cine what is con­sid­ered as knowl­edge is espe­cial­ly con­test­ed because the field great­ly influ­ences knowl­edge in oth­er fields and oth­er fields also influ­ence how and which knowl­edge is con­struct­ed in med­i­cine. We see this in archives of stan­dard­ized knowl­edge that get cir­cu­lat­ed a lot also in oth­er dis­ci­plines, such as brain atlases, anato­my books and the like (con­cep­tu­al­ized by Susan L. Star as bound­ary objects). With new tech­nolo­gies and new dig­i­tal appli­ca­tions also new dis­ci­plines and stake­hold­ers get involved and claim their say. E.g., (bio)medical appli­ca­tions based on arti­fi­cial intel­li­gence are being devel­oped by teams of med­ical and tech­ni­cal experts, ethi­cists, legal advi­sors, and oth­ers, such as it is intend­ed in the ELSI (eth­i­cal legal soci­o­log­i­cal impli­ca­tions) frame­work manda­to­ry for BMBF projects. The new work­ing alliances raise ques­tions about how knowl­edge is cre­at­ed, trans­lat­ed, passed on, and cre­ate new rela­tion­ships of depen­den­cy. Fem­i­nist STS has a long tra­di­tion in crit­i­ciz­ing (hege­mo­ni­al) knowl­edge and analy­ses how knowl­edge is formed (or con­struct­ed), who is involved with which pow­er and which con­se­quences result there­of. By pro­vid­ing impor­tant ana­lyt­i­cal tools to ask about the pro­duc­tion of knowl­edge and its effects, fem­i­nist STS makes an impor­tant crit­i­cal contribution.

This pan­el aims to dis­cuss the cir­cu­la­tion of knowl­edge in/with/and through dig­i­tal med­ical appli­ca­tions from a fem­i­nist STS view. Exam­ples could be the analy­sis of:

-       cir­cu­la­tions of knowl­edge in empir­i­cal stud­ies on inter-/and trans­dis­ci­pli­nary devel­op­ment and appli­ca­tion of such devices;

-       (shift­ing) pow­er hier­ar­chies through the cir­cu­la­tion of knowl­edge in med­ical applications;

-       social inequal­i­ty through dif­fer­ent access to dig­i­tal applications;

-       the role of inter­dis­ci­pli­nary work in the devel­op­ment and imple­men­ta­tion of dig­i­tal med­ical applications

-       the con­se­quences for users and the impor­tance of users in the devel­op­ment of dig­i­tal devices

-       suit­able method­olog­i­cal frame­works for the analy­sis of these cir­cu­la­tions in med­ical appli­ca­tions; and others.

SUBMISSION OF ABSTRACT

Please send your Eng­lish abstract (300 – 500 words) and a short bio­graph­i­cal note includ­ing, name, affil­i­a­tion and ORCID num­ber (if avail­able) until Octo­ber 16th 2022 to all two pan­el orga­niz­ers: Renate Baum­gart­ner, Cen­ter of Gen­der and Diver­si­ty Research at the Uni­ver­si­ty of Tübin­gen, renate.baumgartner@uni-tuebingen.de AND Tama­ra Schw­er­tel, Insti­tute for His­to­ry, The­o­ry and Ethics of Med­i­cine at the Uni­ver­si­ty Med­ical Cen­ter Mainz, t.schwertel@uni-mainz.de

Perma­link

20. Mrz – 21. Mrz 2023

Nuclear Research in Medicine after the Second World War

Kon­ferenz

This sym­po­sium focus­es on the emer­gence of nuclear med­i­cine as an out­come of sci­en­tif­ic col­lab­o­ra­tion and com­pe­ti­tion, bound­ary and inter­dis­ci­pli­nary work, and encoun­ters between var­i­ous (inter)national stake­hold­ers, as well as polit­i­cal, diplo­mat­ic, and sci­en­tif­ic institutions

We seek pro­pos­als for a con­fer­ence on the his­to­ry of nuclear research in med­i­cine. The con­fer­ence will be held at the Med­ical Uni­ver­si­ty of Vien­na and the Aus­tri­an Acad­e­my of Sci­ences in Vien­na from the 20th to 21st of March 2023. Dead­line for sub­mis­sions is the 15th of Novem­ber 2022.

https://www.stgs.fau.de/2022/09/20/nuclear-research-in-medicine-after-the-second-world-war/

Nuclear research in med­i­cine relies on a high degree of inter­ac­tion. While the pro­duc­tion of radioiso­topes and the devel­op­ment of med­ical devices are car­ried out by physi­cists and engi­neers, chemists and phar­ma­cists take over the syn­the­ses of radio­phar­ma­ceu­ti­cals, while physi­cians focus on their appli­ca­tion. In the absence of hand­books, indus­tri­al­ly avail­able devices, and radioiso­topes, ear­ly spe­cial­ists were also depen­dent on mul­ti­lat­er­al exchanges. These were fos­tered by post-war agree­ments for the peace­ful use of atom­ic ener­gy and inter­na­tion­al orga­ni­za­tions such as the IAEA and WHO. Thus, the for­ma­tion of nuclear med­i­cine as dis­ci­pline was the result of a glob­al bal­anc­ing and stan­dard­iza­tion process dur­ing the Cold War era. Its ori­gins are traced in the first broad clin­i­cal appli­ca­tions of radioiso­topes pri­mar­i­ly in the Unit­ed States and the Unit­ed King­dom just before the Sec­ond World War and con­tin­ued with the world­wide dis­sem­i­na­tion of rel­e­vant knowl­edge and tech­niques that were main­ly trig­gered by the Unit­ed Nations inter­na­tion­al orga­ni­za­tions. Nev­er­the­less, in many coun­tries, nuclear med­i­cine did not get rec­og­nized as a med­ical spe­cial­ty with sep­a­rate res­i­den­cy train­ing until the 1990s.

This sym­po­sium focus­es on the emer­gence of nuclear med­i­cine as an out­come of sci­en­tif­ic col­lab­o­ra­tion and com­pe­ti­tion, bound­ary and inter­dis­ci­pli­nary work, and encoun­ters between var­i­ous (inter)national stake­hold­ers, as well as polit­i­cal, diplo­mat­ic, and sci­en­tif­ic insti­tu­tions. We wel­come con­tri­bu­tions that address the sci­en­tif­ic, polit­i­cal, diplo­mat­ic, and social dimen­sions of these inter­ac­tions, the knowl­edge, resources, and poli­cies involved.

Poten­tial top­ics include:

- Transna­tion­al coop­er­a­tion and com­pe­ti­tion among researchers, clin­i­cal prac­ti­tion­ers, insti­tu­tions and disciplines
– Shar­ing of nuclear med­i­cine knowl­edge, meth­ods, mate­ri­als, and spaces with­in Europe and around the globe
– Devel­op­ment of stan­dards, rules, man­u­als, and measuring/imaging devices
– Polit­i­cal, social, and gen­dered aspects of sci­en­tif­ic inter­ac­tion, licens­ing, and reg­u­la­to­ry gov­er­nance of the field
– Safe­ty, secu­ri­ty, and dis­pos­al of radioac­tive waste pro­duced by nuclear med­ical practices
– Hier­ar­chies and net­works of exchange

Venue
We are plan­ning this sym­po­sium to be an in-per­son event, con­sist­ing of a wel­come recep­tion at the Med­ical Uni­ver­si­ty of Vien­na on the evening of March 20 and lec­tures on the premis­es of the Aus­tri­an Acad­e­my of Sci­ences on March 21. The sym­po­sium will take place in Eng­lish and is free of charge.

Abstract sub­mis­sion
To apply, please send an abstract (no longer than 250 words), a brief bio, and con­tact infor­ma­tion (all in one word file) to Johannes Mattes, johannes.mattes@oeaw.ac.at, by 15 Novem­ber 2022. We will let you know about our deci­sion by mid-Decem­ber. Part of our plan is to pub­lish a col­lec­tive peer-reviewed spe­cial jour­nal issue based on the final sub­mis­sions of the participants.

Perma­link

23. Mrz – 24. Mrz 2023

Feldforschung in der Medizin: Mehrwert und Herausforderungen

Andere

Diese Tagung möchte ins­beson­dere Wissenschaftler*innen in der »frühen Phase« ihrer Kar­riere zum Aus­tausch über ihre Erfahrun­gen als Forschende im Gesund­heitswe­sen ermutigen.

Tagung
Feld­forschung in der Medi­zin: Mehrw­ert und Her­aus­forderun­gen ethno­grafis­ch­er Zugänge zu Gesundheit
23./24. März 2023, Uni­ver­sität Augsburg

Call for Papers (Dead­line: 1. Dezem­ber 2022)

Wie frag­il sich Feldzugänge für Gesundheitsforscher*innen häu­fig gestal­ten, hat die Covid-19-Pan­demie auch und ger­ade im Hin­blick auf ethno­grafis­che Forschung in medi­zinis­chen Set­tings gezeigt. Doch nicht nur Lock­downs und ver­schärfte Besucher*innenregelungen kön­nen Feld­forschung in der Medi­zin bee­in­flussen, erschw­eren oder unter Umstän­den sog­ar verun­möglichen. Medi­zinis­che Insti­tu­tio­nen erweisen sich häu­fig als stark regle­men­tierte Orte, die nicht unbe­d­ingt ein­fach ethno­grafisch zu erforschen sind. Dies zeigt sich beispiel­sweise an aus­geprägten (Wissens-)Hierarchien, spez­i­fis­chen Hygien­evorschriften oder regulierten(Fach-)Kompetenzen, die eine wirk­lich teil­nehmende Beobach­tung beein­trächti­gen kön­nen. Zudem kom­men Ethikkom­mis­sio­nen und beson­ders strenge Daten­schutzregelun­gen zum Schutz vul­ner­a­bler Grup­pen eine beson­dere Rolle im Gesund­heitssek­tor zu, wodurch die Feld­forschung sich hier möglicher­weise anders gestal­tet als in anderen Kon­tex­ten. Neben diesen feld­spez­i­fis­chen Hür­den wer­den auch immer wieder »klas­sis­che« Prob­leme und Grund­satzfra­gen ethno­grafis­ch­er Forschung evi­dent: Wann und wie steige ich am besten
in mein Feld ein – und wieder aus? Welchen Logiken fol­gt mein Feld – und wem folge ich? Und welche Rolle(n) kann, darf und will ich in welchem Set­ting ein­nehmen? Ethno­grafis­che Zugänge zu Gesund­heit sind in diversen Diszi­plinen von großer Beliebtheit, kön­nen aber auch beson­ders her­aus­fordernd sein. Diese Tagung möchte ins­beson­dere Wissenschaftler*innen in der »frühen Phase« ihrer Kar­riere zum Aus­tausch über ihre Erfahrun­gen als Forschende im Gesund­heitswe­sen ermuti­gen. Wir möcht­en Raum bieten für das Sprechen über das Scheit­ern, über Umge­hungs- und Lösungsstrate­gien, über Mod­i­fika­tio­nen. Wir inter­essieren uns für Eure Geschicht­en aus der Prax­is, über Euer Kopfzer­brechen am Schreibtisch, für Eure Reflex­io­nen über Eure Rolle im Feld. Das über­ge­ord­nete Ziel dieser Tagung ist es, Forscher*innen aus diversen Diszi­plinen, die sich mit den gesellschaftlichen Aspek­ten von Krankheit und Gesund­heit befassen, zusam­men­zubrin­gen, um über ihre Forschung in ver­schiede­nen medi­zinis­chen Feldern und über unter­schiedlich­ste Akteur*innen sowie Beruf­s­grup­pen im Gesund­heitssys­tem gemein­sam (method­ol­o­gisch) zu diskutieren.

Von Inter­esse kön­nten fol­gende Fra­gen sein:
Was bedeutet es, Insider*in/Outsider*in zu sein im Kon­text medi­zinis­ch­er Forschung?
Wie wichtig ist eigenes Erfahrungswis­sen, z.B. im Gespräch mit Patient*innen?
Welche Umgangsweisen helfen bei der Dis­tanzierung (und Befrem­dung) im Feld, und wie geht man mit möglichen eige­nen (medizinischen/pflegerischen) Fachkom­pe­ten­zen um?
Inwiefern unter­schei­den sich der Lai*innen- und Expert*innen-Status im Hin­blick auf Krankheit/Gesundheit im Ver­gle­ich zu anderen Feldern?
Welche autoethno­grafis­chen Per­spek­tiv­en brin­gen wir als (pri­vate) Mit­glieder des Gesund­heitssys­tems mit – und ein?
Wie kön­nen ethno­grafis­che Zugänge zu einem ver­tieften Ver­ständ­nis der zunehmenden Dig­i­tal­isierung, Tech­nol­o­gisierung und Per­son­al­isierung des Gesund­heitssys­tems beitragen?
Welche Rolle spie­len Materialität(en) und Körperlichkeit(en)?
Wie sind sie zu begreifen und zu gewicht­en in einem Feld, in dem der Kör­p­er häu­fig als Dreh- und Angelpunkt fungiert?

Ger­ahmt wird der Aus­tausch durch Keynotes von Prof. Dr. Mile­na Bis­ter (HU Berlin) und Prof. Dr. Cor­nelius Schu­bert (TU Dort­mund). In Euren Vorträ­gen soll es allerd­ings weniger um das große Ganze gehen. Um den Mehrw­ert, aber auch die Her­aus­forderun­gen ethno­grafis­ch­er Feld­forschung im Gesund­heitswe­sen exem­plar­isch darzustellen, wür­den wir Euch bit­ten, Eure Beiträge eher inputo­ri­en­tiert zu konzip­ieren und einen Prob­le­maufriss zu skizzieren oder eine  Lösungsstrate­gie nachzuze­ich­nen; der Schw­er­punkt soll primär auf der gemein­samen Diskus­sion liegen.
Bitte schickt Euer Abstract (ca. 350 Wörter) bis zum 1. Dezem­ber 2022 an Ann Kristin Augst (ann.kristin.augst@uni‑a.de) und Bian­ca Jan­sky (bianca.jansky@uni‑a.de).

Eine Rück­mel­dung von uns erhal­tet Ihr spätestens Anfang Jan­u­ar 2023.

Perma­link

23. Mrz – 24. Mrz 2023

Feldforschung in der Medizin: Mehrwert und Herausforderungen ethnografischer Zugänge zu Gesundheit

Andere

Tagung für ‚Nachwuchswissenschaftler*innen’ zum The­ma “Feld­forschung in der Medi­zin: Mehrw­ert und Her­aus­forderun­gen ethno­grafis­ch­er Zugänge zu Gesundheit”

Tagung

Feld­forschung in der Medi­zin: Mehrw­ert und Her­aus­forderun­gen ethno­grafis­ch­er Zugänge zu Gesund­heit 23./24. März 2023, Uni­ver­sität Augsburg
Call for Papers (Dead­line: 1.Dezember 2022)
Wie frag­il sich Feldzugänge für Gesundheitsforscher*innen häu­fig gestal­ten, hat die Covid-19-Pan­demie auch und ger­ade im Hin­blick auf ethno­grafis­che Forschung in medi­zinis­chen Set­tings gezeigt. Doch nicht nur Lock­downs und ver­schärfte Besucher*innenregelungen kön­nen Feld­forschung in der Medi­zin bee­in­flussen, erschw­eren oder unter Umstän­den sog­ar verun­möglichen. Medi­zinis­che Insti­tu­tio­nen erweisen sich häu­fig als stark regle­men­tierte Orte, die nicht unbe­d­ingt ein­fach ethno­grafisch zu erforschen sind. Dies zeigt sich beispiel­sweise an aus­geprägten (Wissens-)Hierarchien, spez­i­fis­chen Hygien­evorschriften oder reg­ulierten (Fach-)Kompetenzen, die eine wirk­lich teil­nehmende Beobach­tung beein­trächti­gen kön­nen. Zudem kom­men Ethikkom­mis­sio­nen und beson­ders strenge Daten­schutzregelun­gen zum Schutz vul­ner­a­bler Grup­pen eine beson­dere Rolle im Gesund­heitssek­tor zu, wodurch die Feld­forschung sich hier
möglicher­weise anders gestal­tet als in anderen Kontexten.
Neben diesen feld­spez­i­fis­chen Hür­den wer­den auch immer wieder »klas­sis­che« Prob­leme und Grund­satzfra­gen ethno­grafis­ch­er Forschung evi­dent: Wann und wie steige ich am besten in mein Feld ein – und wieder aus? Welchen Logiken fol­gt mein Feld – und wem folge ich? Und welche Rolle(n) kann, darf und will ich in welchem Set­ting einnehmen?
Ethno­grafis­che Zugänge zu Gesund­heit sind in diversen Diszi­plinen von großer Beliebtheit, kön­nen aber auch beson­ders her­aus­fordernd sein. Diese Tagung möchte ins­beson­dere Wissenschaftler*innen in der »frühen Phase« ihrer Kar­riere zum Aus­tausch über ihre Erfahrun­gen als Forschende im Gesund­heitswe­sen ermutigen.
Wir möcht­en Raum bieten für das Sprechen über das Scheit­ern, über Umge­hungs- und Lösungsstrate­gien, über Mod­i­fika­tio­nen. Wir inter­essieren uns für Eure Geschicht­en aus der Prax­is, über Euer Kopfzer­brechen am Schreibtisch, für Eure Reflex­io­nen über Eure Rolle im Feld. Das über­ge­ord­nete Ziel dieser Tagung ist es, Forscher*innen aus diversen Diszi­plinen, die sich mit den gesellschaftlichen Aspek­ten von Krankheit und Gesund­heit befassen,
zusam­men­zubrin­gen, um über ihre Forschung in ver­schiede­nen medi­zinis­chen Feldern und über unter­schiedlich­ste Akteur*innen sowie Berufsgruppen
im Gesund­heitssys­tem gemein­sam (method­ol­o­gisch) zu diskutieren.

Von Inter­esse kön­nten fol­gende Fra­gen sein:

  • Was bedeutet es, Insider*in/Outsider*in zu sein im Kon­text medi­zinis­ch­er Forschung?
  • Wie wichtig ist eigenes Erfahrungswis­sen, z.B. im Gespräch mit Patient*innen?
  • Welche Umgangsweisen helfen bei der Dis­tanzierung (und Befrem­dung) im Feld, und wie geht man­mit möglichen eige­nen (medizinischen/pflegerischen) Fachkom­pe­ten­zen um?
    Inwiefern unter­schei­den sich der Lai*innen- und Expert*innen-Status im Hin­blick auf Krankheit/Gesundheit im Ver­gle­ich zu anderen Feldern?
  • Welche autoethno­grafis­chen Per­spek­tiv­en brin­gen wir als (pri­vate) Mit­glieder des Gesund­heitssys­tems mit – und ein?
  • Wie kön­nen ethno­grafis­che Zugänge zu einem ver­tieften Ver­ständ­nis der zunehmenden Dig­i­tal­isierung, Tech­nol­o­gisierung und Per­son­al­isierung des Gesund­heitssys­tems beitragen?
    Welche Rolle spie­len Materialität(en) und Körperlichkeit(en)? Wie sind sie zu begreifen und zu gewicht­en in einem Feld, in dem der Kör­p­er häu­fig als Dreh- und Angelpunkt fungiert?
Ger­ahmt wird der Aus­tausch durch Keynotes von Prof. Dr. Mile­na Bis­ter (HU Berlin) und Prof. Dr. Cor­nelius Schu­bert (TU Dort­mund). In Euren Vorträ­gen soll es allerd­ings weniger um das große Ganze gehen. Um den Mehrw­ert, aber auch die Her­aus­forderun­gen ethno­grafis­ch­er Feld­forschung im Gesund­heitswe­sen exem­plar­isch darzustellen, wür­den wir Euch bit­ten, Eure Beiträge eher inputo­ri­en­tiert zu konzip­ieren und einen Prob­le­maufriss zu skizzieren oder eine Lösungsstrate­gie nachzuze­ich­nen; der Schw­er­punkt soll primär auf der gemein­samen Diskus­sion liegen.
Bitte schickt Euer Abstract (ca. 350 Wörter) bis zum 1. Dezem­ber 2022 an Ann Kristin Augst (ann.kristin.augst@uni‑a.de) und Bian­ca Jan­sky (bianca.jansky@uni‑a.de).
Eine Rück­mel­dung von uns erhal­tet Ihr spätestens Anfang Jan­u­ar 2023.

Perma­link

27. Apr – 30. Apr 2023

In the Frictions: Fragments of Care, Health and Wellbeing in the Balkans

Kon­ferenz

By look­ing at the result­ing frag­men­ta­tion of care in the Balka­ns, this con­fer­ence aims to move away from the  dichoto­mous frame­works of Balka­nism (Todor­o­va, 2009) to rethink the Balka­ns as a site of knowl­edge pro­duc­tion that has more to offer than just “catch­ing up” with the West.

CFP: In the Fric­tions: Frag­ments of Care, Health and Well­be­ing in the Balka­ns, 27–30th April 2023, Uni­ver­si­ty of Zadar, Croatia
In the wake of the Covid-19 pan­dem­ic, inter­est in care, health, and well­be­ing resurged  across  var­i­ous dis­ci­plines. We are inter­est­ed in how anthro­pol­o­gy has respond­ed to new care real­i­ties in the Balka­ns. These fol­low both the pan­dem­ic and the neolib­er­al restruc­tur­ing of the last decades. By look­ing at the result­ing frag­men­ta­tion of care in the Balka­ns, this con­fer­ence aims to move away from the  dichoto­mous frame­works of Balka­nism (Todor­o­va, 2009) to rethink the Balka­ns as a site of knowl­edge pro­duc­tion that has more to offer than just “catch­ing up” with the West. What the­o­ret­i­cal and method­olog­i­cal issues do anthro­pol­o­gists face in their research in the Balka­ns? How do peo­ple in the Balka­ns relate to one anoth­er with­in car­ing rela­tion­ships them­selves? What does care look like in prac­tice and what does it entail? How are car­ing rela­tion­ships shaped and changed? How do these expe­ri­ences and rela­tion­ships inform or chal­lenge broad­er the­o­ret­i­cal concerns?
Dead­line for sub­mis­sions: Octo­ber 15th, 2022. For more infor­ma­tion down­load the call attached or vis­it our web: https://conference.unizd.hr/frictions/.

 

Perma­link

27. Apr – 30. Apr 2023

In the Frictions: Fragments of Care, Health and Wellbeing in the Balkans

Kon­ferenz

. By look­ing at the result­ing frag­men­ta­tion of care in the Balka­ns, this con­fer­ence aims to move away from the  dichoto­mous frame­works of Balka­nism (Todor­o­va, 2009) to rethink the Balka­ns as a site of knowl­edge pro­duc­tion that has more to offer than just “catch­ing up” with the West.

CFP: In the Fric­tions: Frag­ments of Care, Health and Well­be­ing in the Balka­ns, 27–30th April 2023, Uni­ver­si­ty of Zadar, Croatia
In the wake of the Covid-19 pan­dem­ic, inter­est in care, health, and well­be­ing resurged  across  var­i­ous dis­ci­plines. We are inter­est­ed in how anthro­pol­o­gy has respond­ed to new care real­i­ties in the Balka­ns. These fol­low both the pan­dem­ic and the neolib­er­al restruc­tur­ing of the last decades. By look­ing at the result­ing frag­men­ta­tion of care in the Balka­ns, this con­fer­ence aims to move away from the  dichoto­mous frame­works of Balka­nism (Todor­o­va, 2009) to rethink the Balka­ns as a site of knowl­edge pro­duc­tion that has more to offer than just “catch­ing up” with the West. What the­o­ret­i­cal and method­olog­i­cal issues do anthro­pol­o­gists face in their research in the Balka­ns? How do peo­ple in the Balka­ns relate to one anoth­er with­in car­ing rela­tion­ships them­selves? What does care look like in prac­tice and what does it entail? How are car­ing rela­tion­ships shaped and changed? How do these expe­ri­ences and rela­tion­ships inform or chal­lenge broad­er the­o­ret­i­cal concerns?
Dead­line for sub­mis­sions: Novem­ber 1th, 2022. For more infor­ma­tion down­load the call attached or vis­it our web: https://conference.unizd.hr/frictions/.
Keynotes:
Sabi­na Stan, Assis­tant Pro­fes­sor in Soci­ol­o­gy and Anthro­pol­o­gy in the School of Nurs­ing, Psy­chother­a­py, and Com­mu­ni­ty Health at Dublin City University
Čar­na Brković, Vis­it­ing Pro­fes­sor of Cul­tur­al Anthro­pol­o­gy and Euro­pean Eth­nol­o­gy at the Uni­ver­si­ty of Goettingen
Heath Cabot, Asso­ciate Pro­fe­sor at the Depart­ment of Anthro­pol­o­gy, Uni­ver­si­ty of Pittsburgh
You can check the call on the con­fer­ence web page:
Fund­ed by Wen­ner-Gren Foun­da­tion. There will be a num­ber of grants avail­able for ear­ly career schol­ars to par­tic­i­pate in the conference.

Perma­link

27. Apr – 30. Apr 2023

In the Frictions: Fragments of Care, Health, and Wellbeing in the Balkans

Kon­ferenz

We see this con­fer­ence as a step towards build­ing a net­work of anthro­pol­o­gists work­ing on the issues of care in SEE.

Depart­ment of Eth­nol­o­gy and Anthro­pol­o­gy, Uni­ver­si­ty of Zadar, Croatia

and Insti­tute for Phi­los­o­phy and Social The­o­ry, Uni­ver­si­ty of Bel­grade, Serbia

27–30th April 2023

Uni­ver­si­ty of Zadar, Croatia

Con­fer­ence

 

In the Fric­tions: Frag­ments of Care, Health, and Well­be­ing in the Balkans

Care has been broad­ly defined as “every­thing that we do to main­tain, con­tin­ue, and repair our ‚world’ so that we can live in it as well as pos­si­ble” (Fish­er and Tron­to 1991, p. 40). Com­plex rela­tions of care sus­tain our lives and are nec­es­sary not only for the sur­vival of humans and non­hu­mans alike, but also for their flour­ish­ing. Struc­tured through var­i­ous mech­a­nisms and insti­tu­tions, from kin­ships to states, care pro­duces var­i­ous forms of inti­ma­cy and relatedness.

In the wake of the Covid 19 pan­dem­ic, there has been a resur­gence of inter­est in care, health, and well­be­ing across var­i­ous dis­ci­plines. We are inter­est­ed in how anthro­pol­o­gy has respond­ed to the urgent changes in the field of care and in iden­ti­fy­ing the after­math of Covid-19 and post-Covid-19 real­i­ties in the Balkans.

We rec­og­nize, how­ev­er, that the pan­dem­ic has been only one of the most recent dis­rup­tions in rela­tions of care and acknowl­edge that the real-world pro­grams of neolib­er­al restruc­tur­ing are not lin­ear paths that con­verge but are forged in fric­tions of sit­u­at­ed encoun­ters with ear­li­er social and cul­tur­al land­scapes. While the term „Balka­ns” is fraught with ambiva­lent mean­ings and asso­ci­a­tions, this con­fer­ence aims to move away from Balka­nism (Todor­o­va, 2009) and dichoto­mous frame­works to rethink the Balka­ns as a site of knowl­edge pro­duc­tion that has more to offer than just “catch­ing up” with the West. What the­o­ret­i­cal and method­olog­i­cal issues do anthro­pol­o­gists face in their research in the Balka­ns? How do peo­ple in the Balka­ns relate to one anoth­er with­in car­ing rela­tion­ships them­selves? What does care look like in prac­tice and what does it entail? How are car­ing rela­tion­ships shaped and changed? How do these expe­ri­ences and rela­tion­ships inform or chal­lenge broad­er the­o­ret­i­cal concerns?

We see this con­fer­ence as a step towards build­ing a net­work of anthro­pol­o­gists work­ing on the issues of care in SEE.  Pos­si­ble top­ics include but are not lim­it­ed to:

Struc­tur­al vio­lence and care;

Gen­der­ing care;

Racial­iz­ing care;

Sol­i­dar­i­ty and care;

Nar­ra­tives of (health)care;

Spir­i­tu­al­i­ty and care;

Pub­lic and pri­vate health/care;

Human­i­tar­i­an­ism and care;

Care and the commons;

Ecol­o­gy, ecofem­i­nist care;

Care and social class

Care and mobility

Care and the economy

Care and the state

We invite sub­mis­sions for pre­sen­ta­tions of up to 15 min­utes. Please send pro­pos­als of no more than 300 words and a brief bio­graph­i­cal note (100 words) to inthefrictions@gmail.com by Octo­ber 15th, 2022. All appli­cants will be noti­fied of their sub­mis­sion sta­tus with­in four weeks of the appli­ca­tion deadline.

Appli­ca­tions should be sent in a sin­gle Word doc­u­ment. The file name should include the author’s name. The appli­ca­tion should include:

* an abstract (max. 300 words)

* a short bio­graph­i­cal note includ­ing your insti­tu­tion­al affil­i­a­tion, con­tact infor­ma­tion, and major pub­li­ca­tions (100 words)

The con­fer­ence will be held at the Uni­ver­si­ty of Zadar, Croa­t­ia between the 27and30 April 2023.

For addi­tion­al infor­ma­tion, please con­tact Jele­na Kup­s­jak at jelena.kupsjak@gmail.com or Ljil­jana Pan­tović at ljiljana.pantovic@gmail.com.

Con­fer­ence fees (which will cov­er a con­fer­ence pack­age, cof­fee breaks and a wel­come recep­tion) are:

70 Euros for post-doc­tor­ate schol­ars who are attached to insti­tu­tions out­side of the Balkans

60 Euros for post-doc­tor­ate schol­ars who are attached to insti­tu­tions in the Balkans

50 Euros for PhD stu­dents who are attached to insti­tu­tions out­side of Balkans

40 Euros for PhD stu­dents who are attached to insti­tu­tions from the Balkans

*We have applied for fund­ing to cov­er expens­es of trav­el and accom­mo­da­tion for young schol­ars par­tic­i­pat­ing in the con­fer­ence. Should we receive the fund­ing these par­tic­i­pants will be able to apply for a trav­el and accom­mo­da­tion grant.

**Deci­sions about trav­el grant allo­ca­tion will be made based on self-report­ed insti­tu­tion­al sta­tus and income. Upon selec­tion of par­tic­i­pants, we will issue an instruc­tion on how to apply for the grant.

Perma­link

27. Apr – 30. Apr 2023

In the Frictions. Fragments of Care, Health, and Wellbeing in the Balkans

Kon­ferenz

Con­fer­ence at the Uni­ver­si­ty of Zadar, Croa­t­ia orga­nized by the Depart­ment of Eth­nol­o­gy and Anthro­pol­o­gy, Uni­ver­si­ty of Zadar, Croa­t­ia and the Insti­tute for Phi­los­o­phy and Social The­o­ry, Uni­ver­si­ty of Bel­grade, Serbia

Care has been broad­ly defined as “every­thing that we do to main­tain, con­tin­ue, and repair our ‚world’ so that we can live in it as well as pos­si­ble” (Fish­er and Tron­to 1991, p. 40). Com­plex rela­tions of care sus­tain our lives and are nec­es­sary not only for the sur­vival of humans and non­hu­mans alike, but also for their flour­ish­ing. Struc­tured through var­i­ous mech­a­nisms and insti­tu­tions, from kin­ships to states, care pro­duces var­i­ous forms of inti­ma­cy and relatedness.

In the wake of the Covid 19 pan­dem­ic, there has been a resur­gence of inter­est in care, health, and well­be­ing across var­i­ous dis­ci­plines. We are inter­est­ed in how anthro­pol­o­gy has respond­ed to the urgent changes in the field of care and in iden­ti­fy­ing the after­math of Covid-19 and post-Covid-19 real­i­ties in the Balkans.

We rec­og­nize, how­ev­er, that the pan­dem­ic has been only one of the most recent dis­rup­tions in rela­tions of care and acknowl­edge that the real-world pro­grams of neolib­er­al restruc­tur­ing are not lin­ear paths that con­verge but are forged in fric­tions of sit­u­at­ed encoun­ters with ear­li­er social and cul­tur­al land­scapes. While the term „Balka­ns” is fraught with ambiva­lent mean­ings and asso­ci­a­tions, this con­fer­ence aims to move away from Balka­nism (Todor­o­va, 2009) and dichoto­mous frame­works to rethink the Balka­ns as a site of knowl­edge pro­duc­tion that has more to offer than just “catch­ing up” with the West. What the­o­ret­i­cal and method­olog­i­cal issues do anthro­pol­o­gists face in their research in the Balka­ns? How do peo­ple in the Balka­ns relate to one anoth­er with­in car­ing rela­tion­ships them­selves? What does care look like in prac­tice and what does it entail? How are car­ing rela­tion­ships shaped and changed? How do these expe­ri­ences and rela­tion­ships inform or chal­lenge broad­er the­o­ret­i­cal concerns?

We see this con­fer­ence as a step towards build­ing a net­work of anthro­pol­o­gists work­ing on the issues of care in SEE. Pos­si­ble top­ics include but are not lim­it­ed to:

Struc­tur­al vio­lence and care;

Gen­der­ing care;

Racial­iz­ing care;

Sol­i­dar­i­ty and care;

Nar­ra­tives of (health)care;

Spir­i­tu­al­i­ty and care;

Pub­lic and pri­vate health/care;

Human­i­tar­i­an­ism and care;

Care and the commons;

Ecol­o­gy, ecofem­i­nist care;

Care and social class

Care and mobility

Care and the economy

Care and the state

We invite sub­mis­sions for pre­sen­ta­tions of up to 15 min­utes. Please send pro­pos­als of no more than 300 words and a brief bio­graph­i­cal note (100 words) tointhefrictions@gmail.com by Octo­ber 15th, 2022. All appli­cants will be noti­fied of their sub­mis­sion sta­tus with­in four weeks of the appli­ca­tion deadline.

Appli­ca­tions should be sent in a sin­gle Word doc­u­ment. The file name should include the author’s name. The appli­ca­tion should include:

* an abstract (max. 300 words)

* a short bio­graph­i­cal note includ­ing your insti­tu­tion­al affil­i­a­tion, con­tact infor­ma­tion, and major pub­li­ca­tions (100 words)

The con­fer­ence will be held at the Uni­ver­si­ty of Zadar, Croa­t­ia between the 27and30 April 2023.

For addi­tion­al infor­ma­tion, please con­tact Jele­na Kup­s­jak at jelena.kupsjak@gmail.com or Ljil­jana Pan­tović at ljiljana.pantovic@gmail.com.

 

Con­fer­ence fees (which will cov­er a con­fer­ence pack­age, cof­fee breaks and a wel­come recep­tion) are:

70 Euros for post-doc­tor­ate schol­ars who are attached to insti­tu­tions out­side of the Balkans

60 Euros for post-doc­tor­ate schol­ars who are attached to insti­tu­tions in the Balkans

50 Euros for PhD stu­dents who are attached to insti­tu­tions out­side of Balkans

40 Euros for PhD stu­dents who are attached to insti­tu­tions from the Balkans

 

*We have applied for fund­ing to cov­er expens­es of trav­el and accom­mo­da­tion for young schol­ars par­tic­i­pat­ing in the con­fer­ence. Should we receive the fund­ing these par­tic­i­pants will be able to apply for a trav­el and accom­mo­da­tion grant.

**Deci­sions about trav­el grant allo­ca­tion will be made based on self-report­ed insti­tu­tion­al sta­tus and income. Upon selec­tion of par­tic­i­pants, we will issue an instruc­tion on how to apply for the grant.

Perma­link

09. Mai – 11. Mai 2023

Rare Diseases, Global Health, and Social Sciences: Counterbalancing Biomedical Reductionism

Work­shop

The work­shop Rare Dis­eases, Glob­al Health, and Social Sci­ences: Coun­ter­bal­anc­ing Bio­med­ical Reduc­tion­ism aims to bring togeth­er, enhance and fur­ther devel­op social sci­ence and med­ical human­i­ties approach­es to the glob­al­iz­ing RD field by address­ing these chal­lenges and con­cerns that include social accep­tance, equal­i­ty, inclu­sion, polit­i­cal recog­ni­tion, empow­er­ment, and geo­graph­i­cal and cul­tur­al considerations.

Date: 9–11 May 2023

Venue: Brocher Foun­da­tion, Her­mance, Switzerland

Orga­niz­ers: Mal­go­rza­ta Raj­tar (Insti­tute of Phi­los­o­phy and Soci­ol­o­gy, Pol­ish Acad­e­my of Sciences)

& Eva-Maria Knoll (Insti­tute for Social Anthro­pol­o­gy, Aus­tri­an Acad­e­my of Sciences)

Abstract: The last two decades have wit­nessed the grow­ing impor­tance of the “Rare Dis­ease” (RD) cat­e­go­ry in the con­text of nation­al health poli­cies and Glob­al Health. Lack­ing a uni­ver­sal def­i­n­i­tion, RDs are defined as con­di­tions that affect no more than 1 in 2000 peo­ple in the EU and Aus­tralia; they affect few­er than 200,000 and 50,000 in the US and Japan respec­tive­ly. It is esti­mat­ed that some 30 mil­lion peo­ple in the EU and 263–446 mil­lion glob­al­ly live with one of the over 6000 described RDs. In a 2021 res­o­lu­tion, the Unit­ed Nations pre­sent­ed the com­plex nature of the chal­lenges peo­ple liv­ing with a RD and their fam­i­lies face as being intrin­si­cal­ly linked to both human rights and to the Sus­tain­able Devel­op­ment Goals. The 2021 report issued by the glob­al alliance Rare Dis­ease Inter­na­tion­al iden­ti­fied ten com­mon chal­lenges and needs that impact diag­no­sis, care, and treat­ment of the RD pop­u­la­tion glob­al­ly. A sig­nif­i­cant pro­por­tion of the list­ed chal­lenges and needs lies beyond the realm of bio­med­i­cine and life sciences.

The work­shop Rare Dis­eases, Glob­al Health, and Social Sci­ences: Coun­ter­bal­anc­ing Bio­med­ical Reduc­tion­ism aims to bring togeth­er, enhance and fur­ther devel­op social sci­ence and med­ical human­i­ties approach­es to the glob­al­iz­ing RD field by address­ing these chal­lenges and con­cerns that include social accep­tance, equal­i­ty, inclu­sion, polit­i­cal recog­ni­tion, empow­er­ment, and geo­graph­i­cal and cul­tur­al con­sid­er­a­tions. In par­tic­u­lar, the work­shop pro­pos­es to address three the­mat­ic areas that have a sig­nif­i­cant and long-term impact on both the indi­vid­ual lives of peo­ple with a RD as well as on soci­ety, health poli­cies, economies, and pol­i­tics on nation­al and glob­al lev­els. These include (a) vul­ner­a­bil­i­ties of peo­ple with RDs, (2) the patient tran­si­tion to adult­hood and aging, and (3) the judi­cial­iza­tion of health with­in the field of RDs. The work­shop will also crit­i­cal­ly engage RD ini­tia­tives that orig­i­nate in and are pro­mot­ed by the West­ern world, much like Glob­al Health ini­tia­tives, which have recent­ly received ample crit­i­cism for being dri­ven by bio­med­ical reduc­tion­ism. We invite con­tri­bu­tions from schol­ars in anthro­pol­o­gy, soci­ol­o­gy, the med­ical human­i­ties, bioethics, law, and relat­ed dis­ci­plines as well as patient orga­ni­za­tion rep­re­sen­ta­tives that address the social, polit­i­cal, and eco­nom­ic con­se­quences of bio­med­ical reduc­tion­ism in the field of RDs, includ­ing the above-men­tioned topics.

The work­shop will gath­er an inter­dis­ci­pli­nary group of schol­ars and experts who are involved in research, pub­li­ca­tion, and advo­ca­cy in RDs and Glob­al Health. Con­firmed speak­ers include Wales­ka Aure­liano (Rio de Janeiro State Uni­ver­si­ty, Brasil), Gior­gio Broc­co (Uni­ver­si­ty of Vien­na, Aus­tria), Nan­cy J. Burke (UC Merced, USA), Sangee­ta Chat­too (Uni­ver­si­ty of York, UK), Pauline McCor­ma­ck (New­cas­tle Uni­ver­si­ty, UK), and Samuel Agyei Wiafe (Rare Dis­ease Ghana Initiative).

The work­shop is planned as an in-per­son event. There is no work­shop fee, how­ev­er, the costs of trav­el and accom­mo­da­tions can­not be cov­ered by the organizers.

To apply, please send an abstract (300 words max.) and a short bio to Mał­gorza­ta Raj­tar mrajtar@ifispan.edu.pl and Eva-Maria Knoll eva-maria.knoll@oeaw.ac.at by Sep­tem­ber 30, 2022.

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25. Jul – 28. Jul 2023

Work and Disability/Chronicity at DGSKA

Pan­el

This pan­el is focused on how peo­ple nav­i­gate dis­abling, debil­i­tat­ing and/or are enabling expe­ri­ences in and through work, and how these expe­ri­ences are shaped by the social local­i­ties from which they emerge.

We are orga­niz­ing a pan­el on work and disability/chronicity at next year’s DGSKA (Deutsche Gesellschaft für Sozial- und Kul­tur­an­thro­polo­gie) con­fer­ence in Munich (25–28 July 2023). We hope to cre­ate a plat­form for schol­ars inter­est­ed in how people’s being at/in work relate to expe­ri­ences of dis­abil­i­ty and chronic­i­ty, in par­tic­u­lar in (but not restrict­ed to) con­texts of the Glob­al South. Your con­tri­bu­tions to the pan­el will hope­ful­ly lead to a spe­cial issue that taps into this (neglect­ed) field.

Sub­mis­sions (max. 200 words) should go to stefanie.mauksch@uni-leipzig.de. The Call for Paper runs until 15 Decem­ber 2022. Please con­sid­er sub­mit­ting an abstract and cir­cu­late widely.

Being in/ at Work: Repo­si­tion­ing Knowl­edge about Work, Dis­abil­i­ty, Chronic­i­ty (Work­shop)

Dis­abil­i­ty and chronic­i­ty are terms that seek to cap­ture bioso­cial expe­ri­ences that inter­sect with, and affect, how peo­ple engage in work, labor or employ­ment. This pan­el is focused on how peo­ple nav­i­gate dis­abling, debil­i­tat­ing and/or are enabling expe­ri­ences in and through work, and how these expe­ri­ences are shaped by the social local­i­ties from which they emerge. We place empha­sis on how work becomes sig­nif­i­cant for peo­ple whose bod­i­ly con­di­tions or appear­ances are pro­duced as ‘oth­er’ in respec­tive soci­eties, or who expe­ri­ence pain or chron­ic ill­ness that delim­it (but maybe also reshape or expand) their pos­si­bil­i­ties to con­tribute to com­mu­ni­ties and oth­er social arrange­ments. Depart­ing from the focus on work-relat­ed exclu­sion put for­ward in pre­vi­ous inquiries in anthro­pol­o­gy and relat­ed dis­ci­plines, we attend to pos­i­tive rela­tions between occu­pa­tion­al iden­ti­ties and work embod­i­ments on the one hand, and expe­ri­ences of dis­abil­i­ty and chronic­i­ty on the oth­er. Explor­ing new angles on the inter­play between ‘being dis­abled’ and ‘being in/at work’, we ask whether and how work ‘works’ as a form to aban­don or to prob­lema­tize con­struc­tions of dis­abil­i­ty. The work­shop will bring togeth­er schol­ars who address one or more of the fol­low­ing concerns:

Co-Con­sti­tu­tion: How are forms of dis­abil­i­ty and/or chronic­i­ty defined in con­nec­tion to notions and ideas of work? And vice ver­sa, how do dis­abil­i­ty and chronic­i­ty shape extant forms of labor?

Mean­ing-Mak­ing: How do peo­ple with dis­abil­i­ty and/or chron­ic con­di­tions in dif­fer­ent local­i­ties around the globe per­form and talk about their work?

Cri­tique: How can embed­ded under­stand­ings of dis­abil­i­ty, chronic­i­ty and work be brought to estrange the work­ings of admin­is­tra­tive pro­ce­dures, ide­olo­gies and polit­i­cal arrangements?

Reflec­tion and Auto-Ethnog­ra­phy: To what degree is the labor of anthro­pol­o­gists shaped by ableist con­cep­tions? Which poten­tial does dis­abil­i­ty hold to explore exclu­sion­ary dimen­sions of anthro­po­log­i­cal work?

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Vergangene Veranstaltungen

2022

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