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2021

04. Sep 2021

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2019

28. Jun 2019

PODIUMSDISKUSSION - Heilungskooperationen: Was geschieht, wenn Ärzt*innen und Patient*innen aufeinandertreffen?

AGEM-Veranstaltung

Ausgangspunkt dieser Podiumsdiskussion ist die Beobachtung, dass es bei dem Aufeinandertreffen von Ärzt*innen und Patient*innen immer wieder zu einem gegenseitigen Befremden kommt. Standardisierungsverfahren wie die Leitmedizin und die Evidenzbasierte Medizin, welche für Transparenz, Effizienz, Rechtssicherheit und Qualitätssicherung sorgen sollen, führen dazu, individuelles Erfahrungswissen sowohl von Ärzt*innen als auch von Patient*innen zu vernachlässigen. Besonders in Fällen, in denen sich Symptome einer eindeutigen Diagnose und chronische Erkrankungen einer Heilung entziehen, beklagen Patient*innen, dass sie zu wenig Gehör finden und ihnen ihr eigenes Erfahrungswissen abgesprochen wird. Mit der Verbreitung des Internets haben die Möglichkeiten, sich selbst über Krankheiten, ihre Ursachen und Therapiemöglichkeiten zu informieren, neue Formen angenommen und dabei neue Interaktionen und Herausforderungen in der Arzt-Patient-Beziehung mit sich gebracht.
Wir haben Ärzt*innen, Patientenvertreter*innen und Sozial- und Kulturwissenschaftler*innen eingeladen, die Ambivalenzen von Heilungskooperationen gemeinsam zu diskutieren. Wir fragen nach den möglichen Gründen für das diagnostizierte Befremden zwischen Ärzt*innen und Patient*innen und nach den Möglichkeiten einer Verbesserung dieser Situation: In welchen Bereichen wird die Mehrdeutigkeit des medizinischen Wissens zum Problem in der Arzt-Patient-Beziehung? Was vermissen Patient*innen an Ärzt*innen und umgekehrt? Was sind die Vor- und Nachteile informierter Patient*innen? Sollte sich, etwa in der Ausbildung von Mediziner*innen, etwas ändern? Wenn ja, was wäre wünschenswert und was ist realistisch?

Es diskutieren

Charles Christian Adarkwah - Vertretungsprofessor für Versorgungsforschung, Universität Siegen

Lutz Bergemann - Mitarbeiter der Geschäftsstelle des Klinischen Ethikkomitees, Universitätsklinikum Erlangen

Nicole Ernstmann - Leiterin der Forschungsstelle für Gesundheits-kommunikation und Versorgungsforschung, Universitätsklinikum Bonn

Claudia Liebram - Journalistin und Mitbegründerin und -betreiberin des Patientenforums psoriasis-netz.de, Berlin

Birgit Rabanus - Vorsitzende der MS-Selbsthilfegruppe Siegen e.V. und Vorsitzende des Beirats der Menschen mit Behinderung, Siegen

Nadia Schwirtzek - Fachanwältin für Medizinrecht, Gründerin und Geschäftsführerin der premedicare GmbH, Berlin, Zertifizierter Compliance Officer (SHB)

Regina Weinert - Behindertenbeauftragte der Stadt Siegen


Organisation und Moderation

Cornelius Schubert - SFB Medien der Kooperation, Universität Siegen
Ehler Voss - SFB Medien der Kooperation, Universität Siegen

Veranstaltungsort
Haus der Siegerländer Wirtschaft
Spandauer Straße 25
57072 Siegen

Dokumente
Flyer

Kontakt
Cornelius Schubert - cornelius.schubert@uni-siegen.de
Ehler Voss - ehler.voss@uni-siegen.de

Link zu dieser Veranstaltung

27. Jun - 28. Jun 2019

CONFERENCE – Preparing for Physicians. The ambivalences of empowerment

AGEM-Veranstaltung

Joint conference of the Collaborative Research Center 1187 Media of Cooperation and the Association for Anthropology and Medicine (AGEM)

Healing is a cooperative practice that involves multiple agents and requires negotiations of different needs and potentials. These negotiations are usually based on asymmetrical relations between healer and patient. Without specific expertise, skills, and knowledge of healing, there would be no need for consultation, and often patients are looking exactly for such an asymmetric relation to put themselves in the hands of an authority they can trust. Nevertheless, this asymmetry has often been criticized, especially in the realm of modern biomedicine and psychology, and especially in the context of chronic and rare diseases. Professional dominance (Freidson 1970) and a paternalistic imbalance in healer-patient relationships have thus led to an increasing claim for shared decision making and informed consent in order to empower the patient vis-à-vis her or his healer. The aim is to develop therapies and forms of interaction that explicitly seek to re-balance the relationship by taking into account the patients’ knowledge (as e.g. in many psychological therapies), or even trying to turn the asymmetric healer-patient relationship around and calling for full responsibility of patients themselves (e.g. in many esoteric therapies).

The Internet offers new possibilities for getting information and sharing experiences about the inefficacy or even harmfulness of popular and officially accepted therapies, on the one hand, and the efficacy of unknown and unconventional approaches, on the other, which may lead to distrust of professional or institutional authorities. Thus, patients can develop many strategies to carry out their own ideas and plans against a healer’s advice, if they disagree about the cause of the illness and the right course of treatment. Such strategies also may include simulating or neglecting specific symptoms to get a desired prescription, to avoid a specific treatment, or to get a temporary or permanent certificate of illness.

But empowerment is ambivalent. Patients are often torn between trust and suspicion, between the wish to be guided by experts and the wish to become an expert on their own, to give up or to keep responsibility for their health. Too much information can turn empowerment into confusion, and empowerment can also turn into manipulation, e.g. when pharmaceutical companies encourage patients to ask their healers for the drugs they sell (cf. Dumit 2012). Thus, empowerment is hardly straightforward. For instance, in which direction is empowerment oriented? Is it an extension of the patients’ biomedical knowledge? Or does it facilitate increasing demands from doctors, who are approached by patients who figure as consumers or customers? Does it include the right to remain a passive patient? Empowerment does not necessarily pit an autonomous patient against a dominant physician. This mélange opens up questions about the modes and means of empowerment. Who, beyond patients, has an interest in empowerment? Are Internet media engines of emancipation or sources of irritation?

After focusing on the healer’s perspectives and practices at the conference “Preparing for Patients. Learning the skills and values of healing encounters” in 2018, we now focus on the patient’s side and look for descriptions and analyses of their perspective and practices. We call for contributions that explore the ambivalences of empowerment both theoretically and empirically. We especially look for insights into the distributed nature of empowerment, the different constellations in which empowerment might be generated or reduced. Which resources are used to increase or to prevent the empowerment of patients, and which resources are used by the patients themselves? And what are the unanticipated consequences of empowerment?

Keynote: Prof. Nick Fox (University of Sheffield)

Conference language: English

 

Dokumente

Programm

Poster

Kontakt

Cornelius Schubert - cornelius.schubert@uni-siegen.de
Ehler Voss - ehler.voss@uni-siegen.de

Link zu dieser Veranstaltung

2018

29. Jun - 01. Jul 2018

AGEM JAHRESTAGUNG 31 – Preparing for Patients. Learning the skills and values of healing encounters (DE)

AGEM-Veranstaltung

31st Annual Conference of the Arbeitsgemeinschaft Ethnomedizin e.V. (AGEM) in Cooperation with the Collaborative Research Center Media of Cooperation at the University of Siegen

How physicians and other healers conduct their encounters with clients is an  integral element of becoming healers. Nevertheless, this knowledge is only partly provided by official channels or courses; rather, it is often learned in a subtle and implicit  manner  during  practical   apprenticeship.   Despite   broad   investigations of the professional encounters between healers and  their  clients,  few  studies  have  addressed  the  question  how  exactly  these  skills  and  attitudes are  learned. A main criticism of the patient-physician relationship in biomedical contexts has  long been its asymmetry (Pilnick und Dingwall 2011), and empirical studies have time and again reasserted fundamental disparities between those seeking and those providing health services (Begenau et al. 2010). At the same time, these asymmetries are constitutive of the healing encounter, because they form a functional difference between healer and client: without the attribution of special  knowledge and skills to the healing party, the whole encounter would be dispensable. In contrast to biomedical contexts, the encounter of non-biomedical healers with their clients is often conceived as being less hierarchical. Yet, we would assume a similar functional difference between them. We assume that how these asymmetries and differences are managed and performed in daily practice is largely learned in the formative years of apprenticeship.
Since the seminal studies “The Student Physician” (Merton et al. 1957) and “Boys in White” (Becker et al. 1961), there has been little in-depth research on how students of healing practices acquire such skills and how they are transmitted in learning contexts. These studies have shown how  novice  physicians  learn  to  cope  with  the contingencies of daily work and how they learn to balance responsibility and experience. Through fine-grained ethnographic fieldwork, the researchers were able to show how such skills and attitudes are learned in the processes of becoming a competent member, by observing and imitating role models and by being sensitive to the norms and values displayed by significant others. In line with Becker et al., we assume that most of these skills are part of the tacit learning in the “hidden curriculum” (Hafferty and Franks 1994). The hidden curriculum refers to those aspects of learning contexts that do not figure prominently in official accounts, but are learned as part of becoming a member of a healing profession. Despite (or because of) their informal character, they serve as powerful orientations that slowly become taken for granted, in many cases without explicit recognition by those who teach and learn them. In the course of the conference, we want to shed light on how apprentices of healing professions are preparing and are being prepared for their encounters with patients or clients. Irrespective of the given healing cosmology, all healing knowledge is ordered in specific systems, organized in rules, schemes, and procedures that need to be adapted to the individual healing encounter. Therefore, every healing encounter is laced with fundamental uncertainties – not only with respect to treatment but also to interaction (cf. Fox 1980; Henry 2006). And all healing apprentices learn how to cope with these contingencies. The subtle transmission of a “paternalistic” model of physician-patient interaction in biomedical education might account for the long-standing asymmetry that are part of the official program of medical education, despite longstanding calls for “shared decision making” and “informed consent” (Stollberg 2008) . Consequently, “professional dominance” (Freidson 1970) is a skill that needs to be learned before it can be practiced.
Thus, we want to compare and take a closer look at the subtle modes of how students of different healing  practices  –  biomedical  as  a  well  as  all  other  healing traditions – are prepared and how they prepare themselves for their encounters  with  patients.  We  want  to  ask  questions  along  the  following   lines:
•Which attitudes are transmitted for coping with the tension between standard procedures and individual  cases?
•Which roles do authority, performances of authority, competence, empathy, uncertainty, responsibility, and experience play?
•What modes of teaching and learning the “hidden curriculum” can be observed?
Conference Language: English

CME points for physicians and psychotherapists can be obtained.

Dokumente

Poster
Book of Abstracts
Call for Papers

Kontakt

Cornelius Schubert:cornelius.schubert@uni-siegen.de
Ehler Voss: ehler.voss@uni-siegen.de

Link zu dieser Veranstaltung

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