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2021

25. Mrz 2021

PAPER READING WORKSHOP - Navigating 'Ethics in Practice': an Ethnographic Case Study with Young Women Living with HIV in Zambia

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This is a paper reading workshop, with a chance for a Q and A with the first author Constance R.S. Mackworth-Young.

So, you will have the chance to ask questions about both the contents of the paper and the writing/publications process. Please read the paper in advance. No social science background required! For enquires email g.aellah@bsms.ac.uk

The paper will be summarised by Corinna Thellmann, followed by an open discussion, and then the Q and A with the author.

Abstract:

While ‘procedural ethics’ provides essential frameworks for governing global health research, reflecting on ‘ethics in practice’ offers important insights into addressing ethically important moments that arise in everyday research. Particularly for ethnographic research, renowned for its fluid and spontaneous nature, engaging with ‘ethics in practice’ has the potential to enhance research practice within global health. We provide a case study for such reflexivity, exploring ‘ethics in practice’ of ethnographic research with middle-income young women living with HIV in Lusaka, Zambia. We explore the ethical issues arising from the layered interaction of the population (young women), the disease under investigation (HIV), the method of study (ethnographic), and the setting (Zambia, a lower middle income country). We describe how we navigated five key practical ethical tensions that arose, namely the psycho-emotional benefits of the research, the negotiated researcher-participant relationship, protecting participants’ HIV status, confidentiality and data ownership, and researcher obligations after the end of the research. We exemplify reflexive engagement with ‘ethics in practice’ and suggest that engaging with ethics in this way can make important contributions towards developing more adequate ethical guidelines and research practice in global public health.

 

The paper is here: https://www.tandfonline.com/doi/full/10.1080/17441692.2019.1616799.  An open source version is available here for those without institutional access:

https://researchonline.lshtm.ac.uk/id/eprint/4653048/3/Ethics-in-Practice_Mackworth-Young-etal_Authors-Approved.pdf

 

Join Zoom Meeting:

https://universityofsussex.zoom.us/j/96015240088

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16. Mrz - 18. Mai 2021

SEMINAR SERIES - Bioethics in Action

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We are pleased to invite you to attend the II edition of the Bioethics in Action Seminar series organized by the RUEBES L'Altro Diritto, which is fully dedicated to bioethics and racism.

We have internationally renowned speakers, committed to fight racism and discrimination through anti-racist knowledge and practice(s) in healthcare. Look at the full program attached and save the dates!

Participation is free of charge, registration is open at this link https://forms.gle/uiQ5p8hHeXkRwRbs9.

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09. Mrz 2021

Emergent tissue economies: Immunotherapy and the value of cancer tissue

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Webinar in our London School of Hygiene and Tropical Medicine Medical Anthropology seminar series, with Henry Llewellyn, on 9. March 2021, 4-5:15pm GMT (online).

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04. Mrz - 06. Mrz 2021

CONFERENCE - Chronic Living. Quality, vitality and health in the 21st century

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Still possible to register as a non-paper participant! 5 amazing keynote talks, 40 open panel sessions covering topics such as “struggles around care”, “living with/at risk”, “the (un)making of space” and “chronic caring” through 380+ papers. Join us!

CHRONIC LIVING

quality, vitality and health in the 21st century

an international conference

4th - 6th of March 2021, University of Copenhagen, Denmark

Register Here

Keynote Speakers:  

  • Aditya Bharadwaj, Anthropology and Sociology, Graduate Institute of International and Development Studies
  • Jeannette Pols, Department of Sociology and Anthropology, University of Amsterdam
  • Nikolas Rose, Department of Global Health & Social Medicine, King’s College London
  • Susan Reynolds Whyte, Department of Anthropology, University of Copenhagen
  • Joe Dumit, Department of Anthropology, University of California Davis

While still (too) many people die from fatal diseases, more and more people all around the world are living with chronic conditions. Qualitative aspects of daily living, thus, emerge as objects of knowledge as well as sites of interventions just as “lifestyle” and “wellbeing” figure as targets of more and more health and welfare interventions. “Quality of life” has become a quality of care parameter measured by medical professionals who provide treatments for diseases that cannot be cured, only lived with. A “normal life” has become the promise in advertisements that pharmaceutical companies bring out. Preventive (mental) health interventions, “positive living” HIV projects, and patient associations, while providing advice and support families on how best to “live with” a particular condition, feed into imperatives of living well.

With this move towards quality, vitality and health, and with chronic living as object at the intersection of knowledge production and intervention, a new politics of living continues to unfold which poses methodological, theoretical, and normative challenges in the social sciences of medicine. Medical anthropology, sociology, STS and other neighbouring disciplines have a long tradition of studying the processes of living with (chronic) disease. Countless ethnographic studies have provided insights about how all around the world people go about their everyday life endeavours while actually living with depression, dementia, diabetes, cancer, heart disease, kidney disease and more. As a result, a wide range of analytical tools and theoretical repertoires have emerged to grasp “chronic living” ranging from experience (intersubjectivity), existential meaning (leading a moral/ethical life), suffering (struggling along), belonging (relationality), doing (tinkering), performance (affordances) or as an object of disciplining (subjectivation).

The Chronic Living conference aims to engage, unpack, explore and tackle quality, vitality and health, which is to say chronic living and the politics of living that are at stake in it, and asks questions such as:

 

  • What does a politics of living look like today in different parts of the world amidst demographic, epidemiological, fertility and care transitions as well as widening inequality gaps?
  • In which ways is the daily living, quality of life and/or wellbeing of individuals and communities targeted and sought to be improved?
  • How do we get to know about daily living? Whose daily living and whose knowledge?
  • How have the daily lives of persons identified as ‘at risk’ come to be targeted through preventive health interventions and of those living with (chronic) conditions come to be targeted in efforts to improve their lives?
  • How do people with (chronic) conditions and their significant others strive to live as well as possible with disease? Which particular rhythms, disruptions and potentials characterize the antidepressant-lives, chemo-lives, immunosuppressant-lives, dialysis-lives, factor-lives, antiretroviral-lives, transplant-lives, corticosteroid-lives, insulin-lives and more that millions of people (and their families) lead or seek to access?
  • How do (formal and informal) care practices afford people diagnosed with a disease and their significant others to live well? How has the provision of health care and ideas and practices of “good care” changed as in different parts of an unequal world more and more people live with (often multiple) chronic conditions, at times in conjunction with the vicissitudes of ageing?

 

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25. Feb 2021

SEMINAR - Neglected tropical diseases: reasons for 'neglect' in global health and how attention can be directed in the future

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You are all warmly invited to a seminar run by the Brighton and Sussex Medical School Social Science Forum.

Thursday 25th February at 12pm

Neglected tropical diseases: reasons for 'neglect' in global health and how attention can be directed in the future

Speaker: Samantha Vanderslott, Oxford University

Why do some health topics attract attention, funding, action, and resources, while others do not, and are neglected? How are priorities defined and agendas set in global health? Neglected tropical diseases are exemplary of a health topic that has been singled out as neglected. A concerted effort has been made to address neglect and realign the priorities and agenda setting in global health that led to this group of diseases to be sidelined. However, the underlying reasoning and structures that led to their neglect is still a feature of global health, and attention must be redirected to prevent further neglect and the neglect of other health issues that are ignored. A paper from the speaker can be downloaded here: https://www.tandfonline.com/doi/pdf/10.1080/19452829.2019.1574727

Event zoom link: https://universityofsussex.zoom.us/j/93669959359

All are welcome, no background in social science required. Please feel free to circulate and contact Gem on g.aellah@bsms.ac.uk with any queries.

 

Warm regards

Gem Aellah

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